Sunday, February 1, 2015

#stoptheseizures Cannabis Is Medicine - In Memory Pictures



In January 2015 The Parents Coalition for Rescheduling Medical Cannabis released its You Tube video simply titled #stoptheseizures. The video shares our message that cannabis must be removed from the federal government's banned Schedule 1 list so that medical research can happen in the United States and patients can have safe access. It took of beyond our wildest expectations. This was in the top 100 videos on You Tube for the day of its release and hit 50,000 views in two weeks.

We decided to ride the momentum by inviting parents of kids with debilitating conditions and sick adults to post their pictures with #stoptheseizures, #stopcancer, #hope4autism, etc. as the hashtags and cannabis is medicine and their states as the tagline. Participation was so overwhelming that we've turned this into a post card campaign to Michelle Obama.

Why the First Lady? In the past we reached out to the Attorney General, the Health and Human Services Secretary, and the President himself to little response. So this time we direct our plea to the mother figure of America, Michelle Obama, mom to mom. Our message is simple: talk to your husband. Please ask him remove cannabis from the banned federal Schedule 1 list so research can happen in the U.S. and patients with debilitating conditions can have safe access.

On February 9th 2015 we will send thousands of postcards of our kids from all 50 states to the First Lady so they arrive at approximately the same time in an avalanche. Our objective: to meet with her office and open a dialogue on this issue.

This past week we noticed our pictures were disappearing from the photo gallery on Facebook. Not all of them, just here and there, but enough vanished that we noticed. We can only assume that as these are being shared people are flagging them as offensive and Facebook is removing them. So, in addition to sharing them in the photo gallery of our public Facebook page we will also store them, state by state, or, in some cases, condition by condition, on this blog.

Below are photos that parents have posted in memory of their children who have passed from seizures while waiting for access to this medicine, as well as for Jackson, who is not pictured. We thank them not only for sharing their children's stories with us but also for their continued advocacy on behalf of others.



 
 





Sunday, January 25, 2015

PCRMC #stoptheseizures Video Goes Viral

Beth Collins, a lead Parents Coalition for Rescheduling Medical Cannabis organizer from Virginia, created our official video. It was in the top 100 videos on the day it launched and has garnered 51,000 views to date.

This video, simply called #stoptheseizures, shares who we are and what we are trying to accomplish for our children. Have a look.



Monday, January 5, 2015

White House Petition to Remove Whole Plant Cannabis from Schedule 1



Today the Parents Coalition for Rescheduling Medical Cannabis launched a White House petition. In it we ask President Obama to remove whole plant cannabis from Schedule 1 so research can happen in the United States and patients can have safe access.

If this petition reaches 100,000 signatures by February 4th, 2015 the President will address our issue. Please sign this petition and consider sharing it every day through February 4th to help us reach the magic number for a response.

To sign the petition the White House requires you to create an account, which will make it easier should you wish to sign any other White House petitions in the future. I know this is an extra step, but it will be well worth our time when reach 100,000.

You can find the petition here.

Sincerely,

Suzanne M. De Gregorio
Parents Coalition for Rescheduling Medical Cannabis

Saturday, October 4, 2014

Grassroots Lobbying Webinar for Medical Cannabis Advocates: Part II

grassroots photo: Grassroots GrassRoots.gif


Special thanks to Jennifer Bevan- Dangel for providing us with such useful information.



Lobby Like a Pro 2:
The Outside Game
Jennifer Bevan-Dangel
Common Cause Maryland
jbd@commoncause.org

Overview
•This week’s goals:
•How to build the outside campaign
•Press strategies and when to use them
•Coalitions, grassroots, and other support
•Tips and tricks
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Strategy vs Tactics

•Tactics: the elements that make up a campaign
•Strategy: the most efficient way to your goal
•Unless you have unlimited time and resources, strategy is key
•Stategies/tactics must all work together
•Takes a leap of faith; set your strategy and
keep to it
•Re-evaluate if the landscape changes
•Strategy is driven by your targets
•You can have multiple targets; may require
multiple strategies
•Strategy and targets can evolve over a
multi-year campaign
 

Ask yourself…
•What is your objective?
•Who is your target?
•What is needed to move your target?
•Who else will be a critical target?  What motivates them?
•How do you most effectively put
those pieces in place?
•Who will try to block reform and how do you
counter them?
•Who will help you and how do you maximize their support?
•Where is the press on this now and how hard will it be to get them engaged?
•Is there an easier target or an easier way to get things done?
•Taking an hour to brainstorm will save countless hours later!
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Types of Strategies
•Inside game
•Target is easy to move, just needs smart lobbying
•Grasstops pressure
•Use key people, ie other elected officials, coalition partners, major donors to
move your target
•“Hero” opportunity
•Positive press coverage and minimal grassroots outreach can move your target
•Inverse is the threat of negative press
•Grassroots pressure
•Apply direct pressure from the grassroots through petitions, action alerts,
call-ins, etc
•Full-court press
•Building a movement from scratch; press, grassroots, grasstops, and lobbying
required


Elements of a Strategy
•Tone
•Is your target blocking change? The hero to save you? A potential leader? The
arch-nemesis?
•Create a message box, keep consistent throughout a campaign.
•Know your real objectives
•Don’t let your immediate objective – ie passing a bill – creates a strategy
that could undermine your ultimate objective – ie getting a regulatory system
that will work in real life
•Make sure you have the real target
•Is there a “man behind the curtain” blocking reform?
•Know who your key partners will be and work together
•Ideally you can all be on the same page with strategy
•If you can’t agree at least stay coordinated; good cop/bad cop
•If partners would be toxic, communicate but keep arm’s length



Draft Strategy
•Objective: Pass Bill 999, to allow medical marijuana in MD
•Target: Committee Chair Carter-Conway
•Secondary Target: Senate President Miller, swing votes on committee
•Strategy: Create a hero moment for Conway, other Senators
•Tone: “you can be a leader”, “our kids will thank you”
•Opponents:
•Health industry, big pharma
•Allies:
•Nurses, recreational marijuana advocates, parents groups
•Tactics:
•Build coalition of health groups
•Parent lobby night
•Press outreach, goal: editorial in Sun
•Report on how pharma is trying to block these advances
•Change.org petition





•Maryland ranks worst in the nation when it comes to the compactness of our
congressional districts.  Four of our eight districts are among the most
gerrymandered in the country.
•Maryland’s current plan has been called “comically gerrymandered”.  Critics
have called the map “highly partisan and racially charged”.
•Elected officials cannot adequately represent constituents when the district
slices through counties, communities, and neighborhoods.
•Gerrymandered districts create situations where all votes are not equal, and
they undermine confidence in the democratic process.

Maryland must take the politics out of redistricting and create a fair and
equitable process for drawing the lines.
•There are different models for drawing district maps in a fair and equitable
manner such as citizen, independent, or non-partisan commissions. 
•We need to study the types of reforms that have been enacted in other states
and determine what will work best in Maryland.
•The final process that Maryland adopts must ensure that minority communities
have a seat – and a voice – at the table.
Voters should chose their elected officials – elected officials should not chose
their voters.
•An independent process allows for greater transparency and public participation
when drawing district lines.
•Minority communities have a greater ability to ensure adequate representation
that will listen to their concerns.
•Elected officials can get to know their communities and fairly and adequately
represent all the neighborhoods in their districts.
problem

solution
action

vision
We must act now to get a new process in place before the lines are drawn again
in 2022.
•Maryland draws new congressional and legislative districts every ten years, to
update the maps for population changes.
•If we establish a commission to study different processes now, we can have a
new process in place by 2022 when the maps will be drawn again.

Maryland’s congressional districts are drawn for politics – not people. 


Build a team
•Steering committee:
•Should meet regularly, must agree on strategy and tone, should have sense of
time commitment from each group/person and their specific strengths
•This layer drives the train. They are dictating tactics and keeping the effort
moving forward.
•Coalition members:
•Should meet often enough to stay informed and engaged. Should understand the
tone and the general structure of the campaign. Know their level of engagement
and helpful relationships.
•This layer should have specific deliverables, steering committee holds them
accountable to perform.
•Supporters:
•Must agree with the objective of the campaign. Willing to put their name to the
effort. Should be asked to do more (ie call legislators or circulate petition)
but don’t expect it to always happen.


Do you want them on your team?
•Some groups are worth spending time to cultivate, get engaged.
•Other groups should not be at the table or should be kept at arms’ length.
•Your coalition should reflect your strategy.
•Scenario: advocates for legalization of marijuana want to help your bill. How
do you include them?
•Are they respected? Are they strategic? Do they have good/bad relationships?
•Will they change the tone or message of the campaign?
•Will they respect your goals and strategies?
•Do you work well with their leadership – mutual trust and respect?
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Press
•Opinion coverage
•Letters to the Editor: 100-200 words; anyone local to the paper can submit.
Tend to relate to a story in the paper.
•Op-eds: 250-500 words. You can draft and place; or cultivate VIPs to place
them. Should have a theme or unique perspective.
•Editorials: Written by the paper editorial board. Tend to be related to
timely/relevant topics. You can cultivate by meeting with the editorial board.
•Earned media
•Press conference: actual event, press is invited. Advisory out in advance to
notify, release out immediately before/after for them to quote. Can also do
webinars, conference calls.
•Release: get out information, quotes, recent research or reports, etc. Draft
the release so the press can use it as written.


Tips for Talking with Press
•What are reporters looking for?
•Something different today than yesterday.
•Surprising, unexpected, counterintuitive. The first, biggest, most
comprehensive.
•Raises new issues, problems, solutions – contains tension.
•Linked to what’s already in the news.
•Intriguing to your neighbor.
•Compelling human stories.
•Prepare your message
•Know your message before you speak to a reporter. Stick to your message and you
will feel more in control of the interview.
•Use concise, clear language to convey your message. Avoid jargon, acronyms.
•Keep it to no more than three points.
•Talking with reporters
•When a reporter calls, ask questions first. Be cautious without being
intimidated.
•Don’t say “no comment.” If a reporter asks you about something you don’t want
to talk about, simply say: “I’d rather not talk about that, but I’d like to tell
you about this.” And then return to the main message you want people to know.
•Be candid and honest – never tell a reporter something untrue. If you don’t
know the answer to a question, tell the reporter you will try to find out or
refer him/her to another good source if possible.
•Don’t argue with reporters. Don’t be defensive.
•Nothing is off the record.
•Be sensitive to reporters’ tight deadlines. Call back promptly.


Press tips
•Paid media
•Advertising space in local or online papers; radio ads
•Don’t forget blogs and political bloggers.
•Use Twitter to reach reporters.
•Re-tweet their articles and tag them in your tweets.
•Know the reporters that cover your issue
•Have a quick list of folks to call when a story breaks
•Occasionally give a key reporter a scoop on a good story
•Get to know them as people; grab a coffee or lunch
•Be a resource
•Thank reporters after a good article, thank editors after a good editorial
•Make sure your target sees your press hits!



Grassroots   
•What type of person will care about your issue + take action?
•Where do you find them?
•How do you get them engaged and keep them engaged?

•Have the materials in place to quickly connect
•Website, fact sheets, petition and/or postcards, contact info for legislators
•Have a system for collecting names
•Have the system in place before the names!
•Go where they are
•Table at festivals, ask to speak to groups, get partners to circulate
•Use social media to connect
•Promoting posts pays
•Be strategic! You can’t be everywhere; focus on people who can influence your
targets.


Tools
•Facebook, Twitter = must have
•Tumblr, Linked In, Instagram – ‘nice to have’
•Use consistent hashtags
•Legislators are using social media; almost all are on facebook, most are on
twitter.  Organize a coordinated moment of action where the target’s twitter
page gets inundated with tweets on the issue.
•Websites
•Wordpress is cheap, easy to use but just gives a website platform
•Integrated tools with targeted email systems can be worthwhile. Nationbuilder,
GoDaddy both good tools
•Web domains are pretty cheap, worth buying related names
•Change.org or MoveOn.org for petition sites
•Use Word templates for quick, snazzy fact sheets
•Easel.ly growing in popularity
•Get business cards from Staples and print your own.
•Include website, facebook, and twitter on EVERYTHING


Building the pressure
•Use different types of grassroots contacts:
•Mass email        1 person
•Personalized email    2-3 people
•Real letter        5-10 people
•Phone call        20 people
•In-person visit    50 people
•Fake it till you make it
•Literature drops in and around your target’s neighborhood
•Grassroots outreach to people your target will run into
•Gathering names in front of target’s favorite grocery store
•Getting someone the target knows well can do more than getting 500 people off
the street


Events
•Town hall or forums
•Brings new people in, gets existing people more engaged. Can invite target to
speak, puts pressure on them to commit to action. Can generate press coverage.
•Tele-town hall; done through conference call. Cost associated with this
service.
•Volunteer activities:
•Grassroots canvass; go door-to-door.
•Phone banking; there are services that let you do patch-through calls to
legislators offices.
•Working fairs, festivals, other events.
•Train leaders to give presentations and speak to groups. Have a power-point
they can use.
•House parties to engage new people, get petitions signed.
•‘Flashy’ events:
•Fun run or walk; sit-ins; circle the state house; picnic or party; etc
•Be creative!


Tricky Tricks
•Think through how the tactics interplay with each other
•A big grassroots petition drive could be press worthy if done in a unique or
clever way
•Always ask for money
•You can always spend money so don’t hesitate to ask for it!
•You can ask a non-profit to be your fiscal agent to collect and spend tax
deductible donations.
•You don’t need an official organization to be a ‘coalition’
•Give yourself a flashy name and always make yourself seem bigger than you are
•Don’t be afraid of the limelight…
•Your story is powerful and you are the best advocate
•… but don’t forget to share it.
•Reporters like to have different sources so line up other speakers


Resources
http://www.prdaily.com/Main/Articles/8251.aspx
http://www.prdaily.com/Main/Video/99.aspx
http://www.mrmediatraining.com/index.php/2011/02/17/the-21-most-essential-media -training-links/
http://biznik.com/articles/how-to-give-a-great-print-media-interview-five-tips-y ou-dont-want-to-miss

Sunday, September 28, 2014

Medical Cannabis Advocates Urge AG Holder to Remove Plant from Schedule 1 Before Leaving Office

 photo Holderreschedulingmeme2.jpg

Eric Holder has recently announced that he is resigning his position as Attorney General. Around that time the Justice Department leader told Katie Couric,
"I think it's certainly a question we need to ask ourselves, whether or not marijuana is as serious of a drug as heroin, especially given what we've seen recently with regard to heroin -- the progression of people from using opioids to heroin use, the spread and the destruction that heroin has perpetrated all around our country. And to see by contrast, what the impact is of marijuana use. Now it can be destructive if used in certain ways, but the question of whether or not they should be in the same category is something that we need to ask ourselves and use science as the basis for making that determination."


The Parents Coalition for Rescheduling Medical Cannabis invites all advocates to call and write the Attorney General's office on September 30th 2014 asking him to remove cannabis from Schedule 1 before he leaves office.

Please leave a message on the comment line 202-353-1555 AND send an email with attn: Atty. Gen. Holder in the subject line to askdoj@usdoj.gov.

To track the progress of this effort join our event page on Facebook.

Sunday, September 21, 2014

Lobbying Training Webinar for Medical Cannabis Advocates, Part II

grassroots photo: grassroots movement grassroots237201152_std.jpg

Part two of the Lobby Like A Pro training webinar will take place on Tuesday, September 23rd from 8:00-9:30 p.m. Jennifer Bevan-Dangel of Common Cause will share general lobbying guidance such as communication tools, strategies, and background about governments and how they work. Don't miss this great opportunity to learn effective strategies for engaging your elected officials.

For details on how to register please visit the event page.

If you missed part one notes from that session are stored on Google Drive.


Thursday, September 18, 2014

Why a Chemist Mom Turned Medical Cannabis Advocate




Parents Coalition for Rescheduling Medical Cannabis co-founder, Gena Dalton of Alabama, was recently featured on the front page of The Huntsville Times.



Gena's daughter, Charlotte, who was eventually diagnosed with Dravet Syndrome, had her first status seizure at seven months old. It lasted thirty minutes. One month later, in March of 2013, the infant had another status seizure, this time for forty-five minutes.



The local hospital had no sense of urgency. Sometimes babies have seizures, Dalton was told, as Charlotte was sent home with an appointment for the following month. Not having it, Gena quickly got her baby into LeBonheur Children's Hospital in Memphis for extensive testing.  "Mid-May I get a call from a neurologist at LeBonheur: Charlotte had a sodium channel deletion (Dravet Syndrome). He told me whatever I do, don't read the internet. Of course, the first thing I do is read the internet."



Gena found an article in the Colorado Gazette about a little girl, also named Charlotte, who has Dravet Syndrome and experienced dramatic seizure reduction on cannabis oil. Though the medical details reminded Dalton of her own Charlotte, this straight-laced mother and chemist assumed it was just pro-marijuana propaganda. "Wouldn't researchers and the government already have a handle in this to help thousands of suffering children? Wouldn't something this simple already be considered?"



For Gena, what follows has the feel of destiny. "By late summer 2013 I went through a period of hard depression and grief. I never watch TV. Ever. But for some odd reason, in late August I turned it on. As fate would have it, CNN's documentary WEED aired that night." That's when she knew this was real.



Dalton was thrilled the help her daughter needed existed but heartbroken that it was inaccessible. Illegal even. Nevertheless, she was now a mom on a mission. Gena wrote dozens of letters to politicians sharing Charlotte's story and asking for help. The negative replies were piling up when one legislator, Mike Ball, asked for more information.



While Gena and her mother set about shoring up Mike Ball's support, police officer dad Dustin Chandler was forging a coalition across the state. "I went on a stalking mission to find Dustin. I knew if we worked together we would accomplish more together than separately."



Gena, Dustin, and other Alabama parents were crucial to the passage of Carly's Law, legislation that allows the University of Alabama to conduct a CBD oil trial for epilepsy, but their victory was hard won. "We were told, 'Can't you guys just wait until next year when we don't have to worry about reelection?' NO!, we said. Our children might not be alive next year." After many media appearances and trips to the state house in Montgomery, Carly's Law passed. Unanimously.



As fate would have it, Gena's work was far from over. "You know, everything has a place and a reason, though we may not be able to see it at the time. Back in March, my family, shoot, the entire state, was ecstatic." However, Gena's joy quickly transmuted to guilt and grief when the CBD bill in nearby Georgia failed to pass due to partisan politics.



"I literally cried when I found out Georgia's HB 885 had failed.", said Gena. "We live in America. How could one state support initiatives to help sick children and another a few miles away did not? I thought about the children in Georgia going without and the families feeling desperate and hopeless. It hurt my soul. I called Dustin nearly in tears saying, 'We have to do something!'. He put me in touch with Corey Lowe in Georgia and BAM!, you guys were born.", Dalton told fellow Parents Coalition members on our leadership organizing page. "Had HB 885 passed, we wouldn't be here on this thread tonight."



Parents across the country who, like Gena, helped pass medical cannabis legislation in home states hit roadblocks accessing these laws for their children due to federal restrictions. The Parents Coalition for Rescheduling Medical Cannabis advocates the removal of cannabis from Schedule 1 so research can happen in the United States and patients can have safe access. To join our efforts contact us at cbdoilky@gmail com or visit our Facebook page.